from
the book How to Have a Baby: Overcoming Infertility
by Dr. Aniruddha Malpani, MD and Dr. Anjali Malpani,
MD.
Previous page:
The Emotional Crisis of Infertility
Next page: Infertility
and Sexuality
Table of Contents
How
can you cope with the stress of infertility ?
How
can you cope with your infertility in your daily life
?
How
can you cope with your friends and relatives ?
What
times can be especially difficult ?
How
does infertility affect your marriage ?
What
is the relationship between stress and infertility ?
When
should you seek professional help to cope with your
stress ?
How can you
cope with the stress of infertility ?
Even though the
stress of infertility is often unavoidable, there are
many steps that you can take to decrease the pain. First
of all, both of you must recognize that you'll have
different feelings and different reactions at different
times. If you expect your partner to behave in a certain
way, you may create additional stress. Together, you
should become informed about infertility and its treatment.
Learn to focus on those factors which are within your
control ( for example,, stopping smoking ) than those
over which you have no control ( for example, your age).
As you examine the treatment options and emotional stages,
you can identify in advance the times that you will
have difficulty. Then, as a couple, you can plan to
make them easier. Talk about your feelings concerning
infertility and its treatment. Determine if your expectations
of one another are realistic, and accept differences
of opinion that your partner may have.
Sharing your feelings is essential when dealing with
the emotional aspect of infertility. At times, valued
friendships are especially important, but friends and
family may not understand what infertility means, and
they will sometimes make insensitive remarks. As a result,
feelings of isolation may increase, and this could lead
to depression and loneliness.
Although it is true that many people
do not understand infertility, it is important to remember
that others don't know what you're going through unless
you tell them. If friends make discouraging comments,
try not to close them out. You may want to attempt to
let them know how you feel and how they can help. Some
of the following tips may be helpful.
- Don't assume that everyone understands
your needs and what you're thinking.
- Don't always put on a brave front.
Friends and family may think that you are not distressed
and don't need emotional support.
- Try to identify your feelings and
share them. Putting your thoughts down on paper is
often a helpful exercise.
- Offer friends and family reading
material concerning infertility. Articles or books
with quotes from individuals who are infertile are
especially beneficial.
- Become aware of your own anger directed
towards your body, your partner, and your friends.
It is important to recognize its effect on you and
your ability to communicate with others.
- Examine your expectations of yourself
and try to understand that infertility can lead to
feelings of helplessness and loss of control.
- Examine your expectations of others.
You will be disappointed if you expect others to always
be there for you.
- Accept your own feelings and
acknowledge that there may be a time when it is okay
for you to avoid certain emotionally painful situations.
How
can you cope with your infertility in your daily life
?
Undergoing treatment can "eat up" into your entire day
- waiting to talk to the doctor, waiting to take your
injections, waiting to do scans, waiting for blood test
reports - it's endless and all you do is wait! The treatment
seems to take all day - and you don't seem to have time
to be able to do anything else. You need to take control
of your time. While some waiting is unavoidable, a lot
can be minimised. Can your husband learn to give you
the injections so that you don't have to come into the
clinic for them? Can you get the blood tests reports
on the phone? Also, learn to make good use of the waiting
time - you can read more about your problem ; and also
talk to other patients in the clinic - this often become
the place for an informal "support group" meeting!
The waiting to get pregnant also makes
you put the rest of your life on "hold" you find you
cannot make plans for the future because you do not
know what lies ahead. Should you plan to go on a holiday
next month - what if you get pregnant? Should your husband
accept the new job, even if it means a transfer to another
city and you will have to find a new doctor? This can
be frustrating - not only are you not getting pregnant,
but you also cannot get on with the rest of your life!
You need to try to separate infertility from other important
aspects of your life - and remember that you are a worthy
person irrespective of your fertility. Women often have
a harder time, because they have been taught that their
life revolves around their family - which has yet to
be started! Often getting a job is helpful, because
it keeps you occupied and bolsters your self-esteem
by confirming what you know - that you can accomplish
useful things with your life irrespective of your fertility.
How can you
cope with your friends and relatives ?
Talking to relatives and friends can
be difficult when they ask awkward and thoughtless questions
about infertility. Some typically painful questions
include:
- So when are you going to start a
family? You two aren't getting any younger!
- When are you going to stop concentrating
on your career and start on a family?
- Well, I guess we'll never be grandparents.
- Oh, I have just the opposite problem
- I get pregnant so easily.
- I wish you'd take one of my kids
- they drive me crazy!
- I hear they're having tremendous
success with test-tube babies. Why don't you try it?
- You can always adopt.
- Any good news yet?
Questions and comments from others can
be turned into opportunities for you to explain your
situation more fully to close friends; or you can discourage
further discussion. Be firm and pleasant - and don't
let yourself be put on the defensive. After all, just
because a question is asked does not mean it deserves
an answer, so with a smile, you can let them know that
it's none of their business without being rude yourself.
Think about how you will respond to
these questions - and plan ways in which you can successfully
manage the conversation. There are emotional barriers
between the fertile world at large and infertile couples
- and you need to work to overcome this!
Dr Epstein has described activities
which you can use to help yourself at http://www.mindspring.com/~yepstein/activ.htm. Check
this out - it's a very valuable DIY resource !
What times can be especially
difficult ?
Social gatherings such as weddings where the conversation
focuses on pregnancy and children can be difficult to
cope with. You'll also inevitably have friends who become
pregnant during your infertility treatment. The news
that infertile friends have conceived with treatment
can be bitter-sweet - you are happy for them, and know
that this also means there is hope for you; but you
feel it's unfair that you are not the one pregnant,
and sometimes despair whether you will ever be able
to have baby. Furthermore, holidays and birthdays may
bring added stress by reminding you that time is passing
by without children.
Time becomes the enemy - whether it
is the incessant ticking of the biologic clock, or the
endlessness of waiting for the next menstrual period.
The few days before your next period is due can be hell
for both of you. The suspense is killing - and you await
every day with bated breath to see if the period has
started. Each twinge of pain or drop of discharge is
monitored carefully - and if the period is delayed,
hopes start rising. Then, when the menstrual flow starts,
all the castles in the air come crashing down, and you
are inconsolable. You sometimes wonder - is it worth
beginning all over again?
Coping with treatment is difficult too
- especially when you know that for most treatments,
it is impossible to predict what the outcome is going
to be. Also, with nature's imperfection and today's
technology, the chance of your not getting pregnant
in any cycle will always be more than the chance of
your conceiving. Often the key to success may be to
repeat the treatment several times but this can be pure
torture! You need to be realistic about your chances
of conceiving - this level headedness can help to buffer
the disappointments and tribulations of failure. Some
women feel that they must maintain a "positive" attitude,
no matter what and put up a brave front to the world
- but pretending to be hopeful when you are broken inside
increases your burden.
In order to decrease your feelings of helplessness and
to regain control of your emotions, there are several
things you can do. First of all, take the time to learn
about your infertility. By doing this, you will feel
more in control at your doctor's office and you'll be
better able to understand the tests and procedures that
you're undergoing. Read about infertility treatment,
and discuss your ideas and opinions with your physician.
It's also important to talk with all of your health
care providers. For example, your nurses may be able
to help you with troublesome emotions as well as medical
questions, or a technician could explain test procedures
and results.
You need to make an "action plan" outlining
possible courses of action as regards your medical treatment.
For each treatment cycle, hope for the best and prepare
for the worst. If you get pregnant, that's fine; but
you should know what do next if you do not so that you
are not shattered when it doesn't work. Many couples
refuse to think about the possibility of failure and
plan treatment on an ad-hoc single cycle basis. This
is unrealistic and you are only fooling yourself. Being
realistic allows you to cope with the ups and downs
of treatment - and you need to have a time perspective
which includes 4 to 6 treatment cycles, so as to give
yourself a reasonable chance of success.
During treatment, you need to set your
own limits. Sometimes, treatment becomes a merry-go-round,
which never stops and you find that you just can't get
off. Some patients get "hooked" onto treatment and never
give up - at great pain and expense to themselves. Decide
when you will stop treatment and which treatments you
will try. This is a decision only you can make and it
should satisfy you that you have done all that you want
to - so that you do not have any residual feelings of
regret later! If medical therapy becomes too stressful,
consider taking a break. When necessary, make it a point
to remind friends and family that these are your decisions
and that you know what's best for you.
Little things that you do for yourself
can make a big difference in how you handle your infertility.
Write down positive things you have done or good things
that have happened, and read them often. Plan a special
evening, and share your thoughts and feelings with your
partner. You and your partner may want to join a support
group so that you can meet people who are experiencing
infertility. It is also important to become more informed
about infertility, so that you can share this information
with friends and family who do not seem to understand
the stress and pressure surrounding this disorder.
Many patients find religious support
at this time is very helpful - and a deep belief and
abiding faith in God can help you immensely in tiding
over this crisis in your life. Others use meditation
to help themselves.
How does infertility
affect your marriage ?
Infertility is a medical problem that involves two people
- and both of you remain involved even if only one person
needs medical treatment. Attend medical appointments
together if possible - it is very lonely and frightening
sitting alone in the doctor's office, and the support
you give by your presence is very helpful. Sometimes
the partner who is undergoing all the tests and treatment
( usually the woman!) may feel resentful and angry at
all the poking and prodding. Blow off your feelings
- but not at your partner - rage at fate instead. Chances
are your spouse would do anything to take this burden
from you. If you are the partner who is not being treated,
you may feel strangely guilty that you are getting off
"free". You may also be upset and blame your partner
for the infertility problems - but being upset and giving
needless blame are two different things. Some husbands
are very upset about all the procedures that their wives
have to undergo - and often cannot bear to see the pain
they have to go through.
Men and women generally respond to infertility
differently. Generally, while men are concerned about
infertility, it may be less crucial to their self-esteem
and identity. Also, handling the emotional impact of
infertility may be more difficult for them because they
are not used to voicing and sharing these types of concerns
- they are taught to bottle up their feelings. On the
other hand, women frequently accept the label of infertile
as a key aspect of themselves and who they are. In Indian
society, the pressure to conceive is directed towards
the woman, and it is often she who has to bear the brunt
of its impact.
It is common among infertile couples
for the woman to be the much more verbal and emotional
partner. This often leads to the wife thinking and talking
incessantly about infertility, and her whole world now
revolves around how to have a baby. She talks ( or complains
or screams or cries ) about it and wishes her husband
could feel the intensity of her pain. He tries to be
supportive, but never seems to be able to do or say
the right thing, so he gets "put off and shut off" and
refuses to talk about it - exacerbating the tension
even more. In order to help keep infertility from becoming
an all-consuming event and to break this vicious cycle
of one-sided conversation in which no productive communication
occurs, the "20-minute rule" recommended by Merle Bombardieri
of Resolve, is very useful. You need to set aside a
period of time each evening to talk about infertility.
Use a timer to limit each person to 20 minutes and let
one speak and then the other. The person not speaking
needs to listen intently.
This technique is useful in achieving
the following outcomes:
- The wife will talk less about infertility
and will present her feelings more succinctly.
- The husband is more willing to listen
because he is assured of an end point.
- The wife feels she has an interested
listener and is supported.
- The rest of the evening may be spent
in more pleasant pursuits.
- You may both feel relieved to see
the other feeling better.
- In all likelihood, as the wife
feels she has less need to talk about infertility,
the husband will begin to be more expressive - so
that the wife no longer needs to "grieve for two".
Communication in your relationship may
change as you and your partner deal with infertility
and its treatment. Sometimes, you may keep emotions
to yourselves as you try to protect one another from
painful feelings. This may create especially difficult
feelings such as anger, blame, and guilt, and you may
find that there is even more pressure in your relationship.
You have the right to feel differently about infertility
treatments and choices - after all, even though you
are a couple, you are still individuals with your own
separate identities. Individual responses depend on
personality, coping mechanisms, who has the fertility
problem, and your relationship with your partner. You
may feel hopeful and optimistic, while your partner
feels hopeless and despondent - and you may find that
you are balancing on opposite sides of an emotional
seesaw. You can agree to disagree - but keep your heads
and fight fairly, and honestly.
Acknowledge the fact that infertility
does put a lot of stress on the marriage. In fact, it
is not uncommon for some marriages to break down because
of the pressure which infertility subjects them to.
However, if you have the maturity to deal with this
crisis in your life together, you will find that learning
to cope with infertility allows you and your partner
to grow and become closer as you share your feelings
throughout this difficult time - and your marriage will
become much stronger than most marriages because you
have weathered a difficult time together successfully.
A sense of humour will help you cope
much better with the stresses of infertility. I recommend
that all my patients watch the film,
This is based on a true life story.
Not only is it very funny, it will also help you cope
better with your spouse !
What
is the relationship between stress and infertility ?
Most infertile couples are under considerable stress.
Personal, social, family, financial. Hardly surprising
– when you want to get something and you cannot, this
is a perfectly normal and natural response. Thus, it’s
obvious that infertility causes stress.
However, what about the converse – can
stress cause infertility?
Stress is ubiquitous, and– and in today’s
world, stress is something we are all exposed to. It
has now become fashionable to blame the "stress of modern
life" for all ills – including infertility, and many
elders feel that it is the stress which the modern generation
is exposed to, which is responsible for the increase
in the incidence of infertility. Stress can cause disruption
of the body’s equilibrium, and excessive stress can
interfere with ovulation, so that women may not produce
eggs. While this is a biologic explanation for how stress
can cause infertility, it is unfortunately become all
too common to blame stress for everything. Often a form
of victim-blaming – "You are too stressed out to get
pregnant. Just relax and go for a holiday, and you’ll
get pregnant".
However, while stress can decrease fertility,
it is obviously too simplistic to blame the couple for
being stressed out. Thus, if a woman has blocked tubes,
then this is going to cause her stress – and it’s obvious
that in this case it’s the blocked tubes causing the
stress, rather than the stress causing the tubes to
get blocked! However, for some couples, specially those
with unexplained infertility, this relationship can
be a complex chicken and egg problem.
It is useful to develop constructive
ways of coping with the stress of infertility. Many
programs have focused on the mind-body relationship
for the infertile couple, and have reported gratifying
successes. While this is useful as a sole mode
of treatment; it is perhaps even more useful in teaching
couples to cope with the stress of taking treatment.
We too encourage our patients to be
optimistic – to hope for the best, while preparing for
the worst. However, since many patients blame themselves
when they do not get pregnant, the backlash of this
is that then the wife does not conceive, the husband
often blames her further by saying she was too stressed
out, which is why she didn’t conceive. This is simply
adding insult to injury, and is very unfair!
When
should you seek professional help to cope with your
stress ?
If you remain depressed, rather than having "ups and
downs" that seem to be related to your treatment, you
may need to seek professional therapy. Counseling can
help you honestly examine your feelings, determine your
priorities, and improve your coping skills.
There are several signs that indicate
serious depression. If you find yourself constantly
feeling sad, desperate, worthless, or inadequate, professional
counseling may help you better understand your situation.
Other signs that indicate a need for professional counseling
are lack of motivation, withdrawal from social activities,
feeling overly sensitive, vulnerable, or guilty, and
having suicidal thoughts.
In addition to the emotional signs of
depression, there are several biological and physical
signs that you should look for. For example, if you're
having difficulty falling asleep or staying asleep or
if you find yourself waking up early and being unable
to go back to sleep, this could signal depression. Other
signs are excessive increase in or loss of appetite,
loss of sexual desire, and fatigue.
You might also want to seek help if
you and your partner are unable to communicate with
each other about your infertility and its treatment,
and if you're having difficulty coping with extreme
anger or resentment.
It is important to select a therapist
who has experience in infertility treatment and the
difficulties and emotions that go long with it. Remember,
you are choosing the therapist. It is acceptable to
interview a number of professionals in order to select
someone who is familiar with your situation and who
makes you feel comfortable.
Dr. Domar has pioneered the development
of specialized Mind-Body programs which are specifically
designed for infertile couples. These teach couples
useful tools, such as yoga and meditation, to help them
to elicit the relaxation response which improves their
physical and emotional responses to stress; and also
behavioral strategies to enhance coping skills. The
goals of these programs are to increase sense of control
and well-being; and develop skills to ease the infertility
treatment process, and has been shown to help many patients.
Infertility
Movie
Please do watch this movie
- it describes the emotional status of an infertile
couple so well !
Next page: Infertility
and Sexuality
Previous page:
The Emotional Crisis of Infertility
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